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The Yellow Book

  • Posted on February 2, 2012 at 7:38 pm

When Mom first came under the care of Beacon Community Services, they talked about a “yellow book” that was supposed to include the “care plan” for Mom.  This plan was to be used by the Home Support Workers, to note any changes or concerns, for the next worker.  Depending on who you talked to, it was designed for when Substitute workers would be assigned, so they could be kept current as to what Mom required. It meant I didn’t have to tell them, or explain.

In theory anyhow, but after 2½ plus years, I have found the Yellow Book to be merely a daily diary of  ‘washed, all okay’ BS.  Even when they noticed an open sore, nothing was noted in the Yellow Book, nor did Beacon Community Services bother to update it.  When I mentioned that to a Supervisor, some time back, I was told that the online care plan was update.

Think about that for a second.  IF they can update the online Care Plan, as they claimed, then how come every time a new worker showed up at the home, they hadn’t a clue as to what was involved?   In fact, many still assumed Mom had a broken wrist, which was back in July 2009.

Should Note that yesterday, the Supervisor for this district was present, for the purpose of doing a review on Mom’s condition, and in updating the so called Yellow Book. Least that was the explanation offered for the visit.

Issue number one that I have, is simply how often will that book be updated, and to what end does it really serve?

For example, our regular morning worker, Tracy, has no need to check the book. She is here five days a week, and can easily tell if Mom has a new issue, or not. She is very good at assessing Mom’s condition, and adapts to each situation, as needed.  Why should she be writing in a yellow book, that she did what she was here to do?

My other issue is, is this book simply a means to show due diligence?

IF workers are provided with an Online Edition of the plan, that is updated as claimed, then why do they need to look into the book? And if there is a condition they spot, why write it in a book, when they should be bringing that condition to someone’s attention, such as myself? The duty Nurse at Beacon?

I can see a benefit to such a book, for those who are alone, and have no one present when a worker is there. However, that book should be more than just scribbling some notes about giving the patient a wash, making the breakfast.  It should be about important issues, about changes noted, or things to keep an eye out for, such a Patient who is having memory issues, who should have their urinary output recorded, or bowel movements noted.  It should detail what pills were taken, if such is the need, or other details, that are not mundane.

Workers assigned to any Patient, SHOULD KNOW BEFORE WALKING IN THE DOOR WHAT THEIR DUTIES ARE.   Honestly, do you send a certified plumber to someone’s home if their car won’t start?

Bottom line is that COMMUNICATIONS between the Patient & Beacon are needed.  It shouldn’t be based on the Patient having to phone to see if a worker is coming, or to complain about care.  That should be a routine task assigned to an Office Worker, to keep a follow up and dialogue happening between the Patient & Beacon.

Course that assumes that Beacon actually cares about both their workers, and the Patients entrusted into their care.

COMMUNICATION between all parties has to be free flowing, without fear of retribution, or penalty. I know, from past experiences, that there is an intimidation factor, that Patients do feel that if they complain, they risk losing their home support.  It is a reality, that needs to be addressed, but not by Beacon Community Services, but by VIHA.

It is the GOVERNMENT who is paying for this service, and they should be in regular contact with the Patients, insuring that ANY PRIVATE AGENCY is doing as they are contracted to do.  IT IS UP TO VIHA to oversee this entire home support, and not leave it up to those private firms, tasked with that job.

Consistency, Qualified, allows for Adaption

  • Posted on January 31, 2012 at 4:14 pm

What Beacon Community Services FAILS TO UNDERSTAND is that by having Inconsistent workers, coming into one’s home, is a health and safety risk.

Regular workers are needed for those requiring long term home support.

One major reason, is that if you have consistent qualified help showing up each day, you can adapt to situations such as I had to do today.

Mom was too weak, too tired, to get out of bed, for a simple sponge bath.  Normally at 9am, that is the routine, but she was just too weak, too tired.

ONLY because the afternoon worker scheduled was qualified, did I make the decision to forgo a full sponge bath, but instead simply had the regular worker do a wipe and depend change. Even this simple procedure, exhausted Mom, but it was better than a full on bed bath.

Knowing the worker that was coming this afternoon, and that she was qualified, allowed me to not overtax Mom this morning.

It may seem trivial, minor, but fact is, the added stress can lead to serious health complications, such as Stroke. YES, a stroke, because if you are stressed, your already weak heart has to beat faster, has to pound faster to get the blood going. That is just an accident waiting to happen, so trivial, I don’t think so.    Would you think it trivial if it was your Mother?

Considering she didn’t get out of bed until just before 1 PM, I can only imagine how it would have been, if she had been subjected to a full bed bath, or sponge bath.

So by reversing the order, so that this afternoon gave her a full sponge bath, it has helped refresh her, helped to not tax what little energy she has available.  It went fine, and even generated a smile or two.

AND THIS IS ONLY BECAUSE THERE ACTUALLY WAS A QUALIFIED WORKERS SLATED FOR THIS AFTERNOON.   COURSE, THERE IS THE DOUBT THAT WHO IS ON THE SCHEDULE WILL SHOW UP, BUT IT WAS A RISK I FELT I NEEDED TO TAKE.    ONE THAT WORKED OUT TODAY.

What Beacon Community Services ( and VIHA ) don’t seem to comprehend, is that worry creates stress, which in turn robs a person of not just needed strength, but the ability to think, to reason.  If you are battered with uncertainty, you wonder if you can afford to adapt to a change in the Patient’s health, or if it would be futile.

Given how BCS changes its schedule at the very last minute, fails to even notify you of those changes, it is a gamble.

Somehow, Health Care for a ninety four year old shouldn’t be a crap shoot.

I am lucky, in the sense that I can manage Mom’s routine on my own, if need be.  But what about those elderly patients who have no one to step in like Mom does?

For everyone who reads this blog, that really is the question you need to be asking yourself.  See, I know that some of these workers are top notch. They know their stuff, but the majority DO NOT.   That is just plain WRONG, and in fact, should be the other way around.  BAD APPLES SHOULD BE THE EXCEPTION,  NOT THE NORM.

It should be a no brainer, in the morning to say to the worker, let’s leave the sponge bath for this afternoon.  It shouldn’t be that I spend from 10am until 3pm worrying about will the qualified worker attend, or will BCS have pulled another of their famous switches.   It is our Tax Dollars that pays for this service, yet VIHA seems to be unwilling to set guidelines, and to ENFORCE THEM.

It Just Is Not Fair

  • Posted on January 27, 2012 at 4:07 pm

Honestly, it just isn’t right that a company takes on the task of providing Home Support for the Elderly, when they do NOT have properly trained personnel.

It is not fair, that our Seniors are subjected to such inadequate care, given all they have done for our society, during their earlier lives.

With the regular worker off today, I had to cancel the substitute being sent for the morning, not because I am an asshole, but simply because it is My Mother.  I cannot, in good conscience subject her to pain, to rough and incomplete treatment, nor can I risk her safety.

My choices for this morning, was Nerissa or Shirley.

Shirley is okay for a last ditch sponge bath, but that is if Mom can manage getting up on her own. I doubt if Shirley could handle assisting Mom in standing, nor do I think she could safely complete a sponge bath gently, given Mom’s lack of strength.

As to Nerissa, well her last visit was a total disaster. It was hard to communicate, let alone get her to do the tasks assigned. That merely adds stress to Mom, and takes what little strength she has, and uses it up way too fast. It makes for a tough night, and sometimes next day or two.

I wonder, what about those elderly patients, who have no one at home, when the Beacon Community Services worker arrive?

  • Consider that there is no phoning of Patients, when the schedule is changed.
  • Think about how you are in your twilight years, and suddenly are confronted by someone you have never met before?
  • How does it feel to have to explain what a person is there for, when you yourself are a bit unfocused?

It makes me wonder, if society really cares about those who are elderly.

I am tired, and perhaps I expect too much.  Maybe the Eskimos had it right, and when someone gets old, becomes a drag on the community they are set adrift on a slab of ice, to drift along the frozen water, until they perish.   I can’t accept that, but it seems that is a lot kinder than what we are subjecting our elderly to.

Maybe it is just being old fashioned, but I wonder, how will it be if I reach the age of Eighty, never mind Ninety Four?

Even if you are not trained, if you have being doing this job for a few months, you should have picked up some knowledge, some inkling of how to treat old people. Yet it seems that isn’t the case.

I should have cancelled this afternoons worker as well, least Mom wouldn’t be drifting off a half hour after she finally left. I mean she is exhausted, from being rushed, and being treated roughly, or maybe the better term is  carelessly.

I simply do not get it, but what I do get, is that this simply isn’t fair.

The Process of Dying

  • Posted on January 21, 2012 at 10:03 am

Yesterday was one of those days.  You get frustrated because your life revolves around watching someone slowly dying and you know, there is nothing you can do about it.  You are helpless in preventing Death from achieving its goal, so when things that you can control, are thrown out of whack, you lash out.

The problem isn’t that people are uncaring, it is that Business is more concerned about the bottom line, than about the people that GIVE them that bottom line.  From the consumer who buys their products / services, to those who help sell the products or provide the services.

When those you answer to, are more concerned about money, than people, then why should they care?

They aren’t being paid to do that, and let’s be honest, we ALL have our own headaches to contend with.

Yet I still Believe that WE have the power to change that. I know the concept of One Person, One Vote, seems archaic today, but then, nearly half of us don’t bother to make that choice. WE STAY HOME.

AND THAT IS WHAT HAS LED TO THIS CORPORATE CONTROL OVER OUR VERY LIVES.

Beacon Community Services has some damn good people working for them, but they are being burned out, and it isn’t because the job is hard, or difficult.  It is because they CARE.   And when you care, it takes a huge emotional toll on you, more so when the people you work for, simply don’t care.

People like Trinity, Tracy, Yvette, Billie, THEY CARE but then we have others like Edna, Rose and many many more, who are there for the paycheque only.  They have closed themselves off, for whatever reason.   It comes from an operation that simply wants bodies to fill the gaps, unconcerned if they are qualified or not.

When you reach this stage of life, to have to be at home 24/7 watching the person who raised you, slowly dying, as age takes its toll, you realize that all the things she taught you, no longer hold sway.

When I grew up, you could rely on Government for many things.  IF a business was mistreating its workers, they would insure it stopped, or was corrected. When you went to buy groceries, you never had to worry about tainted foods, or expired foods, because Government insured that didn’t happen.

No, it wasn’t perfect, there were instances when things slipped through the cracks, but they were rare, not common place. Today FOOD & PRODUCT RECALLS are a daily occurrence. It isn’t that there are just more products, more food being consumed, it is that Government has abdicated its responsibility to the very people who they are supposed to be watching over.

Business is an Entity.   Government is elected by People, and is supposed to be responsible to US.

As you sit by, watching a person dying, bit by bit, you see how the erosion of Government Responsibility impacts you more than if you were in your 30′s or 40′s going about your daily life. You see how simple things like buying food becomes a chore, and you wonder, about all those old people, who have no one to subsidize their income, who must manage on what little they have. You see people take advantage of them by rushing in, rushing out, leaving them exhausted and stressed.

Something that just hastens the dying process.

 

It is a Snow Day

  • Posted on January 18, 2012 at 2:37 pm

Winter has arrived today.

Lots of snow on the ground, more than yesterday, but if you are used to it, well, you’d laugh at the amount. I mean it is about an inch or two, which isn’t a lot, but here in this city, it is like the end of the world.

Which of course also means, changes for workers for Mom.

Which I can understand.

The real issue, is that companies like Beacon Community Services are not equipped to handle emergencies, given they can’t handle the day to day routine.

These firms need to have on hand, a supply of substitutes, who can pop in at a minutes notice, and effectively help those who need it.

Course in an ideal world, the regular workers would ALL be properly trained, so they could go from one patient to another, and be effective. Unfortunately, that simply isn’t the case with most of the current crop of BCS employees.   It starts at the top, and when the Top is only interested in her stipend, well, why should those under her, care for anything else but their own stipend?

Thankfully there are still some old fashioned people working there, like Tracy, Trinity and others, who care about the patient, not about the money.

I think we could add Tammy to that list, who was this mornings substitute.   She followed the instructions, and did an okay job of it too.  Least she didn’t just accept what BCS told her.  Maybe that is the key for substitutes.  Instead of listening to what the Company tells them, they should listen to what the Patient tells them?

Schedulers Need to Improve Their Reading Skills

  • Posted on January 16, 2012 at 10:10 am

reading skillsYou know, it amazes me how so many seem incapable of reading instructions that are placed in a Patient’s file. Take the case for Mom, that has her file clearly marked, in bold letters, that if there are any changes to the schedule, no matter how short of a time, that we are to be notified.

Not rocket science, is it?

Yet the people at Beacon Community Services, most notably the weekend schedulers, seem to consistently miss that notice, and as a result, we get a surprise.

Thing is, I can check the schedule online, but even that is useless, as it can show one thing, and be changed at the last minute.  Like I have nothing better to do, than check the online schedule every frigging minute of the day.

The impact of these changes, is that it puts more stress on an already stressed person, my 94 year old Mother. Adds stress to me as well, but for now, I can manage.  It is Mom that has the problem, because changes in her routine, can take days to settle down.

Then if you add in a worker change, not just a time change, well the after effects can last for weeks.  Like when they sent Rose ten days ago.

Not only was the time changed, but so was the worker.  A worker who simply doesn’t understand that being gentle means you don’t press hard, don’t rub hard.  Specially when the person has Brittle Bones and skin that can tear easily.   The result of her visit, is that Mom was not only stressed, but that her skin, near the groin, was torn.

I don’t believe it was intentional, but was simply a matter of carelessness. That and an inability to understand what the word “GENTLE” means.  It bled, and now still does.  Mom doesn’t heal quickly, plus the tear is on the depend line. It gets aggravated with each change of depends, and so her routine has to change, to accomodate that wound.

It means applying Vaseline to the wound, after being cleaned, to provide protection from Mom’s urine, and from the rubbing by the band of the Depends.

This has added discomfort, not to mention stress, and all because the home support worker was unable to comprehend what one single common English word means.   “GENTLE”.

 

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