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It is just too much some days

  • Posted on February 8, 2012 at 10:45 am

Honestly, I think that the worse part of being the primary care giver for a parent, is the depression it causes.

Sure you can arrange for respite care, but that is for those who can turn their minds off, and hope that those looking after your loved one is competent.  I can’t do that, I guess because I am a worrier, but also because I have seen how Beacon Community Services works.  They simply do not have enough qualified personnel, to do the job.

So it means I stand guard every day, without any real break.

Sure, I get one between 9am and 10am when the worker is here, providing it is the regular worker. Another between 3pm and 4pm but again, providing it is the regular worker.  But that is a brief interlude in the day’s routine, it doesn’t give enough time to decompress, to unwind.  And if it isn’t a regular worker, well even that brief interlude is gone.

Like today will be.

Mom is tired, couldn’t get out of bed and so we had to do a bed bath, but even that was exhausting.  In some ways, more so than if she had gotten out of bed.  This afternoon, a NEW worker is suddenly scheduled to show up.  Thankfully I checked the schedule, but had I not checked, it would have been a surprise come 3pm.

I am tired, worn out from coping, and I question GOD, as to just how much can one be forced to endure before they break.

I am angry, and worn out, but it comes from being under attack now, for over two long years. It is hard to watch the person you love slowly die. Because that is what is happening. She may rally, may live on in discomfort & pain for some time to come, but you are there, seeing it every day, every hour of each day.  It tears at you, because honestly, you can’t do a damn thing about it.

No matter how much you push to make things easier, in the end it won’t matter.  It won’t stop or hold back Death.  He will come, so you sit back, wonder how you can keep going, when nothing you can do, will alter reality.  You are fighting a battle you will never win, and yet, you can’t give in, you can’t surrender and just let it happen.

You look around, and see nothing but despair, but pain.  It isn’t the lack of help, or even the lack of money, that tears at you, but the inability to make it easier for her, that eats away at you, every second of every hour of every day.  It is hopeless, and yet, you know you can’t stop trying.

There is no moment to just ignore what is happening, you are dealing  with it every waking moment, and every sleeping one. You toss, turn at night, wake up because you heard a noise, wait until you are certain it isn’t her. You close your eyes and see blackness, endless night, but when you open your eyes, nothing has changed. It is still the same fight, the same struggle to try and make a difference. Hopefully this morning, you won’t be in crisis mode, or dealing with a new assault from some unseen quarter.

You sit in silence, listening, and yet feeling like tomorrow will be like today, and maybe that will be okay, because at least you are holding it together for now. You worry, if you can manage when something else pops up to strike, and then you worry, how will you manage afterwards.

Depression isn’t just a state of mind, but one that hits your physical being as well. You try to push through it, but like everything else, it just seems all so pointless.  It just doesn’t seem to matter what you do, because in the end, you just can’t win. Hope flickers, but grows dimmer with each passing day, with each new assault.

It is a life you don’t wish on your worst enemy, and yet, if you had to do it all over again, knowing what you know, how can you not but do it?

She is Mom, there is no other option, no other choice.  You do it, because she is Mom.

Caregiving is Expensive

  • Posted on February 6, 2012 at 10:44 am

profits over careI honestly wonder how others manage.

Between the cost of medicines, and incidentals, looking after an elderly parent is not cheap.

To begin with, you basically wind up losing your own income, because caregiving  is a full time job in itself. In some cases more than a full time job, because you are on call 24 hours a day, seven days a week.

Even Interns who work 36 hours straight, get time off.

Your Utilities will be higher, even if you use energy saving appliances.  After all, Older People get chilled easier than most people, so you have to run the furnace more, even at times when you would normally turn it off.  Old people need to be kept warm, which means space heaters as well. Add that to your Electric bill.

Laundry is not once a week, because no matter how much you change the depends, there is spill overs.  Unless you have an abundant supply of clothing for fresh changes, you are going to be doing laundry pretty much daily. I know I do at least one load per day, sometimes more.  That translates into higher water usage, as well as higher electric use.

Even if you wash in Cold Water, it still adds up because you are doing it every day.  Don’t forget that also makes those added essentials like Laundry detergent, bleach additives, go a lot faster.  You can’t afford to run out either, because most of those clothes are contaminated with Urine.

Towels and clothing wear out faster as well, because of the added washing.

Then there is the whole food thing.  Prices continue to go up, just like the cost of heating, electricity.  Old people like certain things, but what they like today, they may not want tomorrow. It can be expensive if you stock up on certain foods, to only find that they no longer want them. If you can’t stock up, then you are forced to buy at regular prices, not just when they are on sale.

Given today’s consumer prices rising almost daily, that is a huge cost to absorb.

Then there are other things, like depends.  You MUST have sufficient on hand, because there are days when you can go through as many as six or more depends, other days you may only need two or three.  You can’t afford to not be stocked up on those.  Okay, you can I suppose if you want to be stingy and mean, but this is your parent, how can you not want them to remain dry and clean?

Plus, if you don’t keep them dry and clean, you run the risk of infection, of worsening health conditions.  That alone has to worry you every time you check the supply, and see it getting small.

Rubber gloves is another issue. IF you don’t use them, you run the risk of passing on your germs, or in becoming infected by theirs.  How is that going to help them if you are incapacitated?  And rubber gloves aren’t cheap.  About $10 per hundred, and if you do three changes a day, that is 6 gloves per day. Doesn’t sound like much, but that means a box is good for about 17 days, but only if there are just 3 changes per day. Add one or two more, and you have less than a 2 week supply.  So you need to stockpile those as well.

Consider the one element that you have precious little of, that is constant too.  TIME.

Each change can run about 30 to 45 minutes.  Then there is laundry, sorting and folding and putting away.  That is a good half hour to forty five minutes every day.   And you are expected to try and earn a living in the time left in between.  Course that doesn’t include preparing meals three times a day, or in getting every day’s medicine lined up.  Medicines that aren’t covered by Pharmacare as well, have to be kept on hand, like laxatives.  Last thing you need is your loved one constipated.

Other essentials like disinfectant sprays, cleaning supplies, go a lot faster when you are looking after a Parent, or elderly person.  It also takes a lot of time, and energy, to do it every single day, because there is no time off.  You are on the job every day, and even when you sleep, you are on the job. You can’t just close your eyes and drift off into sleep, because part of you is awake, waiting for some noise, some signal that something is wrong. You can’t just drift off and not think about it.

Your mind is attuned to any changes, so you can react, deal with it.  Your mind is wondering, will the regular worker be coming tomorrow, or will it be a substitute?  You wonder will she suddenly not want what you have planned for breakfast, or you wonder, what can you make for dinner, so she eats something.

Oh did I mention that you need to have Boost ( or similar product ) on hand to supplement her diet, because she simply doesn’t eat enough food?  That is like $8 per 6 bottles, which is 3 days supply.

Now I guess if you have a good income, its all manageable, but what if you don’t? What if your spouse makes good money, but is at the low end of the Middle Class scale?  After they pay taxes, and you cover the Utilities and car insurance bills, what is left?   Not a hell of a lot, and let’s not forget it costs to live in a house.   Move to an Apartment you say?  Okay, how are three people going to live in a small apartment, that costs about as much as a house does?  Hell many two bedroom apartments cost around $1000 a month, so I’ll take the house over that any day.

I made the choice, to not shove my Mother into a home, and I accept that decision as being mine.  I accept the costs, the stress that comes with taking this on,  Thing is, I wonder why our Government things it isn’t a job?  I get no compensation for it, not even tax breaks, and what little we get, is like a drop in the bucket.  It is frustrating, because you know, Government is insulated from the reality of life. I’d love to see Stephen Harper or Christie Clark manage for a month on what I do.

Maybe they’d be less cruel and callous about the way the Oil Industry rapes our pockets, or how the big telecom giants rip us off for phones, or cable.  Maybe they’d have a little more compassion on setting up rebates instead of doling out a piddly $25 to cover increased heating costs. Maybe they would insure that contracts given out to private firms, were monitored for abuse, for being insufficient.  Maybe companies like Beacon Community Services would not be expanding on the backs of the low income patients they look after, and that the majority of their staff would be qualified, instead of it being a minority.

And maybe I’ll win the lottery tomorrow.

Why are transfers so difficult for so many

  • Posted on January 24, 2012 at 4:21 pm

I have to admit, I am confused as to why simple transfers from the couch to the wheelchair (actually a special transfer chair, that resembles a wheelchair) are so difficult for so many of the Home Support workers we get?   Honestly, even the more experienced women seem to have a difficulty in doing what I think, is a rather simple manoveur.

Okay, risk to back injury, but if you brace your legs properly, and lift with your legs, the risk should be extremely minimal.

With your arms under the Patient’s armpits,your hands are around the shoulder blades It allows them to place their arms under yours, and hold on. You have the strength of your arms ( not the hands ) to bear their weight, and with your leg bent, it becomes a simple matter of simply straightening the leg, to provide the necessary force to lift them up, and gently.

So what is the deal here? Why can’t so many do it?

I mean Tracy who is smaller in stature and weight than Mom does it effortlessly, as does Trinity and Anjoli, who really are considerably smaller than Mom.  I mean they are much more slight in build, but they have no issue in getting her up on her feet, then doing the shuffle to get her into the transfer chair, or out of it onto the couch.

Yvette can manage it, and yet others like Janet, Rose, Edna can’t seem to do it.  Yet all of them claim years and years of experience doing it.

Perhaps I should offer my services to Beacon, in HOW TO PROPERLY TRAIN THEIR HOME SUPPORT WORKERS?

I would like to just take that one hour, off.  I get it in the morning when Beacon doesn’t screw around with the schedule, but the afternoon is becoming a total nightmare. New workers, or those who can’t lift Mom up, is way too frequent.  It just seems that when these girls show up, that I spend the rest of the afternoon, and evening, sorting out the stress they have created, by not being able to get her up.

And maybe Beacon needs to understand what it does.

  1. It causes stress, which isn’t good for someone with her heart condition.
  2. Old people fixate, and Mom thinks that they have trouble, because she is over weight and so she winds up pushing away her food.
  1. Fact is, she isn’t overweight by all that much, but she needs to eat what she can.  Thinking she is too fat for these women, only makes her eat less, which weakens her already low stamina and strength.
  • It is unsafe. She can easily twist her foot, or worse, break a bone, because they rush her, or try to lift her by grasping his arm firmly. She has Brittle Bones, a simple hard grasp can crush her bone.
  • The stress and worry, lead to her inability to force her body to function, such as in having a good piddle, or poop.  Again not healthy.
  • It diminishes her strength, which isn’t good to begin with, thus it makes her more tired, weaker.

I seriously wonder if the people who hire these women, have a clue as to what the job entails?  It isn’t easy, and Worker’s need to be matched with Patients.  Under the current system, the exact opposite happens.   You can’t send someone who can’t do the job, simply because you are enamored by the computer program that adjusts workers/patient schedules.

These are people, NOT NUMBERS.

One day, someone will get hurt, or worse, DIE.   What will Beacon Community Services say then?  What will VIHA do then?

 

Total Lack of Compassion

  • Posted on January 20, 2012 at 2:41 pm

outsourcing is wrongToday is just one more example, of how Beacon Community Services FAILS ITS PATIENTS.

To begin with, how many times are you expected to go online, to check a schedule?

I am assuming that somehow Beacon Community Services expects its Patients to be checking the schedule multiple times per hour.  Yes PER HOUR, because it can change in a blink of an eye.

For example, this morning they changed the time of the regular worker, by a half hour.

Just now, they changed the scheduled worker for this afternoon to another worker.

Can you just see some elderly person going online and checking their schedule each and every hour? I CAN, because old people get nervous, they can imagine all sorts of things, and when you have NO CONSISTENCY IN SUPPLY REGULAR HOME WORKERS, well, you know they are going to be anxious.

Course, just how many elderly people are actually online, or able to use a computer effectively?  Guess those who can’t, or aren’t online, simply sit in urine and feces, hoping that eventually the Beacon worker will show up, or that whoever does arrive, can figure out what to do.

And that is a mild statement.

It is an obvious lack of compassion for those intrusted into their care, by a Government that only considers the bottom line, and not give a damn about the people they are impacting, by outsourcing Home Care to cruel, heartless, greedy corporations.

YES THAT IS YOU BEACON COMMUNITY SERVICES   -  A GREEDY COLD HEARTED CORPORATION

Rushing to Next Patient or Just Added Time Off

  • Posted on December 30, 2011 at 4:02 pm

Over the time I have had Beacon Community Services here, I know that many of the Women have little, if any breaks, during the day. I mean on average they get 10 minutes traveling time from one Patient to the next.

However, with some, I am wondering if they don’t rush through their task, simply so they can actually have a break?

This is what happens when you CONTRACT OUT the work to some private corporation. Rules for Employees become rigid, and worse, they actually are violating the Employment Standards Act, by denying a worker a chance to have a decent break, during their working time. Unless the rules have changed, which is quite possible, an employee was entitled to a one hour break, if off premises, and a half hour break if on premises, or something along those lines.

I know, I can’t go 6 or 7 hours without a break, so how does Beacon Community Services expect it’s home workers to?

How does VIHA even allow that?

The end result is, that I believe that many of these workers, fudge the time. They rush through the routine, to grab an extra five minutes here, ten there, so they can actually have a moment to just decompress.  Let’s be honest, this is a hard job to do.  Given how BCS manages things, it is a wonder they even have a single employee, because frankly they’d have to pay me hundreds of dollars per hour, to do what I do, for Mom.  Course, I think I do it better than at least half of their current crop of employees, and that’s being generous.

I need to check, but in the afternoon service, I am doubtful if ANY workers were here for longer than 40 minutes, which means they have an extra 10 minutes.  I don’t mind, when they are worth it, but when they are like yesterday’s worker ( Edna ) I sure do object.  Yes, BCS has some idiotic phone system to track worker times on the job.   I wonder, has Beacon ever checked?

Perhaps someone at VIHA should be checking those times, because they do PAY BY THE HOUR TO BEACON WITH TAXPAYER MONEY.

Hmm, that gives me an interesting line of though.   I may have to follow this up.

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