Honestly, I think that the worse part of being the primary care giver for a parent, is the depression it causes.
Sure you can arrange for respite care, but that is for those who can turn their minds off, and hope that those looking after your loved one is competent. I can’t do that, I guess because I am a worrier, but also because I have seen how Beacon Community Services works. They simply do not have enough qualified personnel, to do the job.
So it means I stand guard every day, without any real break.
Sure, I get one between 9am and 10am when the worker is here, providing it is the regular worker. Another between 3pm and 4pm but again, providing it is the regular worker. But that is a brief interlude in the day’s routine, it doesn’t give enough time to decompress, to unwind. And if it isn’t a regular worker, well even that brief interlude is gone.
Like today will be.
Mom is tired, couldn’t get out of bed and so we had to do a bed bath, but even that was exhausting. In some ways, more so than if she had gotten out of bed. This afternoon, a NEW worker is suddenly scheduled to show up. Thankfully I checked the schedule, but had I not checked, it would have been a surprise come 3pm.
I am tired, worn out from coping, and I question GOD, as to just how much can one be forced to endure before they break.
I am angry, and worn out, but it comes from being under attack now, for over two long years. It is hard to watch the person you love slowly die. Because that is what is happening. She may rally, may live on in discomfort & pain for some time to come, but you are there, seeing it every day, every hour of each day. It tears at you, because honestly, you can’t do a damn thing about it.
No matter how much you push to make things easier, in the end it won’t matter. It won’t stop or hold back Death. He will come, so you sit back, wonder how you can keep going, when nothing you can do, will alter reality. You are fighting a battle you will never win, and yet, you can’t give in, you can’t surrender and just let it happen.
You look around, and see nothing but despair, but pain. It isn’t the lack of help, or even the lack of money, that tears at you, but the inability to make it easier for her, that eats away at you, every second of every hour of every day. It is hopeless, and yet, you know you can’t stop trying.
There is no moment to just ignore what is happening, you are dealing with it every waking moment, and every sleeping one. You toss, turn at night, wake up because you heard a noise, wait until you are certain it isn’t her. You close your eyes and see blackness, endless night, but when you open your eyes, nothing has changed. It is still the same fight, the same struggle to try and make a difference. Hopefully this morning, you won’t be in crisis mode, or dealing with a new assault from some unseen quarter.
You sit in silence, listening, and yet feeling like tomorrow will be like today, and maybe that will be okay, because at least you are holding it together for now. You worry, if you can manage when something else pops up to strike, and then you worry, how will you manage afterwards.
Depression isn’t just a state of mind, but one that hits your physical being as well. You try to push through it, but like everything else, it just seems all so pointless. It just doesn’t seem to matter what you do, because in the end, you just can’t win. Hope flickers, but grows dimmer with each passing day, with each new assault.
It is a life you don’t wish on your worst enemy, and yet, if you had to do it all over again, knowing what you know, how can you not but do it?
She is Mom, there is no other option, no other choice. You do it, because she is Mom.
I honestly wonder how others manage.
Today is just one more example, of how Beacon Community Services FAILS ITS PATIENTS.