You truly have to walk a mile in a person’s shoes, to fully understand the complexity of being a full time caregiver. Especially if that person, (that you are caring for) is a parent. The roles become reversed, to a degree, but unlike being a parent, you have to balance things with keeping their feelings in mind.
They are used to the one’s making the decisions, not they depend on you. It can be both embarrassing, as well as humiliating.
In so many ways, being a 24/7 caregiver puts you at a disadvantage. Unlike “normal” family interaction, you can’t really afford to have battles, or disagreements. In short, you really don’t get to vent your anger, your frustrations. Least not with your parent, as you did when you were in the ‘child’ role.
And that only increases your stress levels, not to mention can create health issues for you.
It is why that ONE HOUR a day, that the so called ‘home support workers’ are in your home, becomes your refuge, your time to simply be free of the stress, the worry. So when that ONE HOUR becomes a nightmare, becomes no longer a sanctuary, your burnout rate grows. So too, does your level of stress, and your inability to have a calm moment to yourself.
To many it isn’t a big deal, like what is ONE HOUR?
Well, it is the only time you get to wipe your mind of your obligations. It is the time you can sip a cup of coffee, without having to be interrupted to go do a diaper change, or nightshirt change. A chance to simply not have to deal with the smells of incontinence.
ONE HOUR is when you can concentrate on yourself, on your own life, without interruption. OR SO THE THEORY GOES!
It is like being inside the eye of a hurricane. ITtruly is a moment when the winds aren’t swirling around you, when you do not have to deal with the daily grind of care-giving. So when a company like Beacon Community Services sends you incompetent workers, or alter the schedule (without cause) it has a huge impact.
As the situation grows worse, that single ONE HOUR becomes your refuge, your hold onto sanity. When it is taken from you, or when it is never certain that it will be there for you, you suffer, and so does the one you are caring for.
IF ONLY SOMEONE COULD EXPLAIN THAT TO NOT JUST BEACON COMMUNITY SERVICES, BUT TO VIHA, AND TO MANY OF THOSE HOME SUPPORT WORKERS.