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And the Killing Continues

  • Posted on October 2, 2011 at 9:22 am

The phone rings, it is 8:33am and before you can get out of bed, it stops.   Three short rings, and you are awake, so you check and see that dreaded phone number on the display.   Beacon Community Services.

It is like your nightmare is coming to life, because this was your first chance to sleep in, in over 2 weeks. You are exhausted from the stupidity of Beacon Community Services, the stress they caused just the last week by making schedule changes, three of them, and only two with any warnings.  You have dealt with an 94 year old who is afraid another change will happen, at any time.

The paranoia grows, the depression grows, and the fear of waking up in the morning to find that 94 year old dead, becomes a constant night time companion. It makes what little sleep you get, troubled and restless. And here we go again, the phone has rung.

So you call back, they put you on hold at first, then they want to know who you are calling for. You give them the last name, they can’t find her records, so you give them the first name and still the ‘so called’ scheduler can’t find any client ( stop calling them clients, they are PATIENTS ) by that name, so you give them the address, and STILL they can’t find her name anywhere.

You are wide awake now, and then she tells you,  “If it is important, they will call you back” and you lose it.  IT IS IMPORTANT and so you tell them NO, find out who called and why, NOW and as you try to get it across to them, the line goes dead.  You didn’t hit any buttons, so gee, they hung up.

You pull your pants on, slip on your slippers, and pull a shirt on, pissed and angry because you know something is afoot, but what, well hell, they can’t even find a listing for your accounts. IS ANYONE COMING? DID THEY DECIDE TO SEND ANOTHER INCOMPETENT SUBSTITUTE?

The thoughts race through your head as you get upstairs, and call them back.  The same ‘so called scheduler Alice” answers and miracles of miracles, she’s found who called.  ( Like how, if she couldn’t find your account when you were on the phone? ) and quick as a bunny you are transferred to Lisa.  

Lisa tells you there is a time change, you breathe a little easier, because at least it isn’t another idiot being sent, instead it is one of the few competent workers in their employ.

Here is the kicker though. WHY DIDN’T THEY CALL BACK AS SOON AS SHE FOUND OUT I HAD CALLED BACK?

So now, after over 2 weeks, another chance to get some needed rest for me, is gone. I’ll need to wait till next Sunday for a chance at not being awake and on duty at 7:30am, making it nearly a month since my last mini break.   These people haven’t a clue as to how life really is.  They need a reality check, big time but hey, they have their shiny new cars, their brand new iPhones, and they get TWO DAYS A WEEK to sleep in, if they wish.

In the meantime, another change in her routine, which means breakfast is now delayed again, and she is fragile enough, from the bullshit from just last week. Not even recovered from all that garbage, and here we go again. 

What these IDIOTS at Beacon Community Services obviously DO NOT GET, is that it takes more than a day for an old person to recover from the sudden changes. To have workers suddenly show up, that aren’t scheduled, does impact them. At night they worry who is coming in the morning, and even if you check the schedule, it doesn’t mean shit.  I checked last night, at 11pm and there was no change.   Yet here we are, the worker arrives after 9:30 and the whole day is pushed back.   Yes, that includes her lunch, and dinner, because you can’t give her lunch at noon, if she’s only finished breakfast at 11:15am.   Ninety Four year olds tend to take their time in eating, so they DON’T CHOKE.

In turn that means my opportunity to get out to get her needed supplies like Depends, is pushed back so it will take longer, because I can’t sneak out at before 11am, like was planned.  It means shopping for food is pushed back to when stores are busy, adding to the time factor, when really, there isn’t a lot of it.   It also means I am already stressed, and on edge, when I need to keep calm, to cope with her peccadillos that can drive a sane person, insane.

It is UP TO ME, to calm her down, to try and push away her fears that perhaps tomorrow it won’t be Tracy, that it’ll be someone new, or just someone else.  And honestly, even if I can convince her to not worry, it will add to my nightmares for the night.  My own body is resisting the lack of sleep, and no, one can’t just go and lie down later.  Sleep that is interrupted, broken into a bit here and bit there, is not sleep. Oh it may help in your stamina, but it does nothing for your mental state.  It only makes it more disturbed, more in turmoil, and why?

Because a person who works as a scheduler, or receptionist, couldn’t find a listing for your account, and was too stupid, too uncaring, to properly try. Oh she could find who called you, and could they immediately call you back?  Course not, what did it matter to them, they had their 7 or 8 hours sleep, so what if yours was broken, so what if your 94 year old Mother will spend the next two or three days on edge, before finally calming down. Who cares that her left leg drags, that her speech is becoming more slurred with each change, each new fear being thrown into her

After all she is 94 and expendable, she’s old.    Right Beacon Community Services & VIHA?

Training Counts

  • Posted on August 27, 2010 at 10:01 am

It really isn’t Rocket Science, to look after an older person.  It takes patience, and a bit of common sense.  Thing is, you cannot (as an Employer) rely on everyone having that. You need to explain the differences between old decaying skin, & vibrant ordinary skin.

You need to explain that hearing empairments, also goes with a lack of balance, along with the natural fear one has, when dealing with someone new.  It really is Common Sense, that an older person is going to be on edge, when a substitute worker arrives. That is really a Given, yet many ‘substitutes‘ fail to understand that simple logic.

Training has to take into account all the variables, not just the mechanics of how to wash a person, or dry them, or everything else associated with home care.

Training for the OTHER ISSUES should be included, but it seems today, that it is even too much to expect that Home Support Workers even know how to bathe an elderly woman, let along take into account their feelings, their natural embarrassments.

Going It Alone

  • Posted on February 25, 2010 at 12:09 pm

It isn’t a subject I really want to think about, call it perhaps Denial, but then again, maybe it is simply a case of not wanting to face the reality of life.  I mean, we are born, we live for however long we do, then we die.  It is just that, nothing more, nothing less, unless we are fortunate to have some special gift, talent, that will let our lives be remembered.

My own life, will not be remembered by many, if any, and yet it hasn’t been an issue, at least not until now.

Mom is 92, going on 93, and she too will not have many who will remember her. Even my pathetic attempt at trying to make this site for her, will more than likely pass off into the vastness of cyberspace, an odd visitor or two, and that will be it.

I never really realized, just how much a loving partner can play in one’s life. I used to fight, argue with Dad, and yet I see how much Mom longs for him, even now, and I wonder, will David feel that way about me, when I have left this earth?  Maybe I am spending too much time, thinking about what is coming, or maybe not enough? 

This life is fragile, one can go at any time, and Mom has had a good run. I know that, and I know too that she is in pain, but fights on. Yet death will be a release, and yet too, if one believes in God & heaven, she’ll finally be re-united with her soul-mate, Dad.  As much as that should comfort me, it doesn’t.  Call it selfishness, or whatever, but I want to cling on, to hold her with me, though I know the end is coming.  Not today, next month, or even maybe next year, but coming it is, which makes me tremble.

Yet wanting that, I still find the daily tasks annoying, making me irritable, angry, and depressed. I find fault, or talk to myself about her, in a not so loving way. It makes me think of being a bad person, & yet deep down, I want her to be here, to be able to look over and see her reading her book, or the newspaper. It is a total contradiction of emotions, that leave me confused, dazed even. And yet, this is the life I lead, and refuse to change.

I know one should have ‘the talk’ with those who face death daily, such as Mom. I am sure she wonders about what it will be like, if she will meet up with the spirits of Dad, of her parents, siblings, or will it just be an emptiness. I guess, I too, think about that, though try not to.

While there is lots of stuff, about having that ‘talk‘ there is really nothing about who is there to talk to me, the one giving the talk? How do we, manage to cope with dealing with that eventuality? I suppose it is a bit selfish, but there is a feeling of emptiness, of becoming alone, that frightens me. Will David be there for me? or is it already too much for him?

Frankly I think it is too much for him, not even sure how he has managed all these months, as it is, and I know, it is only going to get worse really. I mean if she lingers, if her condition goes from being semi mobile, to immobility, what then? How will he cope with that, and how will he adjust, or will he?

Hell, how will I cope? I am already feeling worn out, broken and just exhausted, but who is there to talk to? David is the love of my life, yet he is not there, or not willing to be there. That hurts, and makes it even more overwhelming, more desperate. I don’t know anymore, where one turns, where one breaks out of the self imposed isolation, that this task creates.

Now I Don’t Talk Enough

  • Posted on December 2, 2009 at 3:16 pm

over-cliffEver had those days, when nothing you do seems to please, or is enough?

I think this is one of them, in a growing long line of them, which makes me question, if I can survive this? I wonder too, how it impacts David, and yet I can’t dwell on that, or on how I feel so exhausted, an hour or less, after waking up. It is almost like a conspiracy, to deny a moment’s peace, and yet, I still believe, that it is the right thing.

Like today’s worker, Yvette. Nice lady, competent too, or so I thought, but frankly the last couple of visits, leaves me wondering. And it has an impact on Mom too. I mean how can you put depends on a person, and leave them at half mast?  Then you spend extra time, discussing how shoddy things are in the world, I mean it is becoming very confusing.

I think too, the lack of communication with others, is taking its toll. Not just on me, but on Mom. Now she says I don’t talk enough, yet each time I ask her if she is okay, if she wants something, or get up and get myself a drink, she doesn’t even look up from her book, at times. Yet I am not talking enough.

There is no book on this stuff, least not one that isn’t clinical, and speaks from the heart. I mean, this isn’t easy when you have a deep emotional connection, with the other. And let’s face it, she is dying. I hate to think that, but it is reality, simply because of her age. I mean she doesn’t have 20 or 30 years ahead of her. That is reality, but where is it written on how to cope with it?

Yes, it makes me angry, scared too, but there is no one to discuss it with, to talk it over with, who isn’t going to respond with the age old reply: “well the older they get…” which infuriates me. I know things break down, but all a guy wants, is someone to understand, not pass judgement, not render sage words of wisdom from on high. I can read the bible for that, but yet, I don’t know.

This is not easy, that is about the only constant I can see here, that it isn’t easy, nor will it get easier, or better. Things will get worse, and that scares me.

Heat, Drinking, & Dehydration

  • Posted on July 7, 2009 at 10:52 am

drink-slobI think one of the biggest issues I have, in caring for Mom, is in getting her to do things, that she needs to do, to stay healthy.

Take the simple matter of drinking enough fluids.

I have never seen someone so stubborn, in not drinking enough fluids. I get her the kind of juices she wants, which isn’t the problem. I think, perhaps it has to do with her ability to swallow.

At times, she does choke on the smallest things, but while it is frightening, if she wants to stay healthy, she needs to drink more liquids. Especially on days when it is hot. Now, sure the house feels cool, thanks to the fans running, but it is still hot, and so she has to drink more.

One of those things, that tests one mettle, because it is frustrating as hell.

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