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I Just Want a Life

  • Posted on August 13, 2011 at 7:34 pm

Is it too much to ask?.

I want to get up when I want, not every morning at 7:30.

I want to wake up, without worrying who will be arriving, or if the phone will ring to say a substitute is coming.

Hell I want to wake up and not worry about having to let anyone in the door.

I just want to enjoy a cup of coffee, without having to listen for a bell or coughing, or other signs of distress.

I want to just be able to smell clean air, not one tainted by urine and gas.

I want to not do laundry every single day, and have to wear gloves to put them into the washer.

I want to be able to just sit at the computer, without hearing whimpering and moaning.

I want to go out for a burger, and not worry about rushing home.

I want to not worry about how many gloves I have on hand.

I want to not measure how much liquid is drunk, how much is voided.

I want to not have to shop for depends, laxatives, every two weeks.

I want to be able to take the dog for a walk, even if its two am.

I want to sleep, without keeping an ear open for the buzzer, or for unusual noises from upstairs.

I want to not have to clean up poop and pee every day, several times.

I want to lay down and nap, whenever I want.

I want to do my work, uninterrupted.

I want to not wash floors daily.

I want to not worry about how to pay for pills, and creams.

I want to not worry about heating the house, when I am not cold.

I want to be able to argue, without worrying about bringing on a stroke, or worse.

I want to not be the strong one all the time.

I want to not be the decision maker every second of every day.

I want to hop in the car and just go out, not worry about when I’ll be back, or even have to explain where I am going.

I want to stay up late, when I want.

I want to be able to watch action videos, or scary ones, if I am in the mood.

I want to not deal with infections.

I want to not always be on watch, on guard for the slightest blemish, or discoloration.

I want to have a shower that lasts more than two minutes.

I want to not weigh every single word, before speaking.

I want to not feel stress the instant my eyes open, till when they close.

I want to not lay awake at night, wondering if I’ll be greeted by death in the morning.

I just want to have my own life.

AND YET, as much as I want that, I also DON’T. 

Having all that, will mean that Mom will have died, and that I doubt if I can cope with, and it is the last thing I really want.  God, what a cruel joke life is.

Why Should We Pay For Old People

  • Posted on March 28, 2011 at 11:02 am

The CBC has a report on the Guaranteed Income Supplement issue.  According to Jack Layton, it is why he refused to support the Harper Government. He wanted $700 Million added, instead of the $300 Million that Harper added.

Honestly, I don’t believe Jack Layton & the NDP defeated the Harper Government, over a $400 Million dollar difference, do you?

In reading the story it seems that the dollar differences really aren’t that huge, which makes me question the accuracy of the figures used.  It states that 5.8% of Seniors live in poverty, but again, what is that level?

Is Mom living in poverty?  I’d have to say NO, but I would also have to say, that without the financial contribution both David & I make, she wouldn’t have the basics.  So I suppose that is indeed living in poverty.

Yet what galls me is two comments, one from a 23 year old and another from some guy who thinks, well, tough titties for those who didn’t save when they could. ( oh yeah, you just know I added my comments to those remarks ) What these comments do, is make me wonder, about the attitudes we have today.

When I was growing up, I was taught that you helped those who didn’t have as much as you. Even if all you had was a loaf of bread, and someone had none, you shared that loaf of bread. I would say, that was the Judao Christian ethic that built this country, or am I wrong?

Whose responsibility is it, to help those who, for whatever reason, are unable to help themselves, such as my Mother?

David & I earn well under $30,000.00 a year. Mom has no private retirement income, no assets even, so whose obligation is it?  I think both David & I do our best, but when your Hydro bill is $300 a month,  your cost for her medications is about $200 for the first six months of the year, who helps when we can’t manage?   And if we are paying for all this, how can we be expected to put aside a nickle for our old age?

It is easy to say, save now, but given the cost of living today, the real issue is… HOW?

We don’t drive a fancy new car, hell our car is a 1982 diesel. Be nice to have a new laundry machine that was energy effecient, but where do I get the $1500 for them?  It isn’t like I can go get a job, because I have to be home, to change her depends a few times each day. I have to be here, to help her to the bathroom, to fix her lunch, dinner. If I don’t, she won’t eat, even if she could get around to fix something.

So whose responsibility is it?   I pour my time, what little I earn, into the household as does my wife, David.  It isn’t fair to him, yet he does it. I mean she is My Mother, not his, but I know if his parents need help, when they are older, we’ll do the same for them. 

You see, that is my obligation, that is my duty, because I am my mother’s son, and my wife’s son in law. It is what we do, it is what should be done, but you know, there are times when you need help. Our old age is screwed, because there isn’t that help now. There wasn’t when they grew up, because back then, the Government told everyone that the CPP would handle it all.   They believed their Government back then, but we know better, don’t we?

I don’t have the answers, I wish I did. I just know that we need a Government that makes some effort to understand our needs. Not the needs of some Corporate Executive, who has two or three houses, who drives a new Lexus every six months. I want a Government that will look at Social Security, and strengthen it, not dismantle it like Mr Harper wants to do.

I want a Government that will support our social programs, not tear them apart.

It is why I know that on May 2nd, I will  VOTE FOR ANYONE BUT HARPER

The Body Grows Tired

  • Posted on February 25, 2011 at 11:05 am
This entry is part 17 of 24 in the series Quality of Life

One minute you are fighting with a lack of bowel movements, then it is a bout of wondering why the urine output is so much less, than normal.   Blood tests show nothing out of the ordinary, and yet her body continues to throw spasms.

It is worrisome, but many say, well she is 93, what do you expect.

Truth is, I don’t know what to expect. Not even sure I really want to know, but then, I do, because how else can I prepare?  A catch 22 for sure, and it is wearing me down. How it must make her feel, I can’t even begin to imagine.

Like this morning, going to the chesterfield, she mentions that there is a van across the street, and people working there.  Problem is, no van, no people there.  How do you say no, that isn’t so?

Then the whole urine output issue.  I mean it was hard to keep up with her, in changing the depends, the nightshirts, and towels.  At least one full change each day, in addition to the first one in the morning.  Now, I even had one day where I was actually able to skip laundry.  I mean all there was, was the morning wash clothes/towels.  No soaker pad from the night, no towel from the night, and just a nightshirt, that wasn’t wet, just changed.

Yet yesterday was like flood gates had opened, but today, so far, it is like being in the middle of the desert.  Bone dry.

Welcome to care giving.

It is these type of changes, that only re-inforce the need for consistent home support workers. They are an important link in keeping the primary caregiver informed of subtle changes. Something a substitute cannot do, simply because they are unfamilar with the state.

By having our regular workers, I have been informed of some changes, which in turn made me pay more attention for them, and subsequently led to me informing our Doctor. Tests are being run, to see what could be causing these issues, and if there is something, well maybe we have caught it in time.  This is the reason I am so adamant of having consistent home support workers.

They can spot changes that no substitute could even imagine.

A Lonely Vigil

  • Posted on February 15, 2011 at 2:19 pm

I can totally understand why Caregiving is not a job of choice for many. I suppose it is easier to simply pass the buck to someone else, than to step up and look after a loved one, 24/7.

In all honesty, I wish I could pass the buck. It would make life so much easier, and perhaps even worth having, a life that is. The job is a chore, even a burden, but then, isn’t that what children should do for their parents?

I struggle with this and wonder, if perhaps Mom should go to a home. I know too, that doing so would shorten her remaining time alive. She would feel abandoned, no matter how good the home would be, and she’d be right. It is selfish (of me) to think that, yet, this is not an easy vigil to manage.

There really is no personal life. Least not if you want to do this task right. It is a pressure cooker, because for every waking moment, you are listening for sounds, that might signal a health crisis.

After all this time, caring for Mom, I have come to one simple conclusion. I don’t want to live to be 93 years of age. I’d rather pass on much earlier, at even the first real sign of serious illness.  It just would be too much for David to cope with, and unless we won a lottery, too expensive for him to manage on his own.

Just Because They Are Old Doesnt

  • Posted on October 5, 2010 at 9:42 am

I think, some assume that because a person is old, takes a long time to reply to questions, that they are, well senile.  They assume, that an old person doesn’t feel like we do, or have the mental faculties to assimilate all that is going on.

BOY ARE THOSE WRONG ASSUMPTIONS

Problem is, they do know what is happening, but are dependent on us, so say nothing. They fear becoming a ‘burden’ or ‘drag’ on those around them, that isolates them. It is their choice, but one that isn’t based (always) on reality.

It comes from perceived signs, like facial expressions, or how the eyes look, or the words used.  It makes them wander in their thoughts, because frankly, it is scary to be facing the end of one’s mortal existence.  No matter how deep one’s faith is, there is always that doubt, that fear.

Old Person Smell

  • Posted on September 18, 2009 at 7:51 am

Back in the day, when I was a kid, people would comment on the ‘old person smell’ and it used to be the butt of many jokes. I can remember them, but today, I notice it, and frankly it isn’t funny at all. It is just one more sign, of a person’s body decaying, coming to the end of its road.

bathI notice smells more, these days, and it isn’t pleasant. Changing depends, three to four times a day, is never fun, it is intrusive into the daily routine, though honestly, it is becoming more and more, part of that daily routine.

Trips to do laundry nearly on a daily basis, is part of that routine now, and unless one purchases a lot of the essentials, it will only grow.

See old people, are just that. They have issues with muscle controls, like holding it in until they can get onto the toilet, becomes a battle, not just physical, but mental. And that takes its toll.

I look at mom, and see a lady who was very independent, who married and moved from a city to a true backwards and rather uncivilized neck of the woods, all because of love. I wonder, as I watch her struggle to not void in the depends, how it must of felt, to leave the safety of family and familiar surroundings, to go to a place, that was really just a dot on the map, where the people were rough, weather beaten.

History is there, of living in an area without running water, where daily showers were unheard of, and where you looked forward to the mail order catalogues, not for shopping ads, but for extra toilet paper for the outhouse.

And now you’ve sort of come full cycle, but in a different way.

Now, the running water is there, but your body, your strength isn’t, to get you onto that toilet, to use that shower hear with all its fancy jets to soak you and massage you at the same time. Now, you use strong perfumes, not to smell pretty, but help cover the smell from the undergarments, from the urine and poop, until you can get them changed.

That ‘Old Person Smell’ isn’t funny, it is a grim reminder, that life is drawing to a close.

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