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The Yellow Book

  • Posted on February 2, 2012 at 7:38 pm

When Mom first came under the care of Beacon Community Services, they talked about a “yellow book” that was supposed to include the “care plan” for Mom.  This plan was to be used by the Home Support Workers, to note any changes or concerns, for the next worker.  Depending on who you talked to, it was designed for when Substitute workers would be assigned, so they could be kept current as to what Mom required. It meant I didn’t have to tell them, or explain.

In theory anyhow, but after 2½ plus years, I have found the Yellow Book to be merely a daily diary of  ‘washed, all okay’ BS.  Even when they noticed an open sore, nothing was noted in the Yellow Book, nor did Beacon Community Services bother to update it.  When I mentioned that to a Supervisor, some time back, I was told that the online care plan was update.

Think about that for a second.  IF they can update the online Care Plan, as they claimed, then how come every time a new worker showed up at the home, they hadn’t a clue as to what was involved?   In fact, many still assumed Mom had a broken wrist, which was back in July 2009.

Should Note that yesterday, the Supervisor for this district was present, for the purpose of doing a review on Mom’s condition, and in updating the so called Yellow Book. Least that was the explanation offered for the visit.

Issue number one that I have, is simply how often will that book be updated, and to what end does it really serve?

For example, our regular morning worker, Tracy, has no need to check the book. She is here five days a week, and can easily tell if Mom has a new issue, or not. She is very good at assessing Mom’s condition, and adapts to each situation, as needed.  Why should she be writing in a yellow book, that she did what she was here to do?

My other issue is, is this book simply a means to show due diligence?

IF workers are provided with an Online Edition of the plan, that is updated as claimed, then why do they need to look into the book? And if there is a condition they spot, why write it in a book, when they should be bringing that condition to someone’s attention, such as myself? The duty Nurse at Beacon?

I can see a benefit to such a book, for those who are alone, and have no one present when a worker is there. However, that book should be more than just scribbling some notes about giving the patient a wash, making the breakfast.  It should be about important issues, about changes noted, or things to keep an eye out for, such a Patient who is having memory issues, who should have their urinary output recorded, or bowel movements noted.  It should detail what pills were taken, if such is the need, or other details, that are not mundane.

Workers assigned to any Patient, SHOULD KNOW BEFORE WALKING IN THE DOOR WHAT THEIR DUTIES ARE.   Honestly, do you send a certified plumber to someone’s home if their car won’t start?

Bottom line is that COMMUNICATIONS between the Patient & Beacon are needed.  It shouldn’t be based on the Patient having to phone to see if a worker is coming, or to complain about care.  That should be a routine task assigned to an Office Worker, to keep a follow up and dialogue happening between the Patient & Beacon.

Course that assumes that Beacon actually cares about both their workers, and the Patients entrusted into their care.

COMMUNICATION between all parties has to be free flowing, without fear of retribution, or penalty. I know, from past experiences, that there is an intimidation factor, that Patients do feel that if they complain, they risk losing their home support.  It is a reality, that needs to be addressed, but not by Beacon Community Services, but by VIHA.

It is the GOVERNMENT who is paying for this service, and they should be in regular contact with the Patients, insuring that ANY PRIVATE AGENCY is doing as they are contracted to do.  IT IS UP TO VIHA to oversee this entire home support, and not leave it up to those private firms, tasked with that job.

Shaking Worse with Substitutes

  • Posted on March 5, 2011 at 2:11 pm
This entry is part 9 of 12 in the series Making A Difference

Mom suffers from what the Doctor calls ” Parkinsonism “.  It is similar to Parkinsons Disease but not quite the same.  Bottom line is, Mom gets the shakes, tremors, that can cause falling. It is scary to see it occur.

An interesting note, is that stress and/or worry, seems to make the shaking occur more often, more intense even. It isn’t just that her leg can’t move, despite the brain wanting it to. It is where her whole body literally shakes, as if having an earthquake within.

Now this last week, we have had substitutes Tuesday, Wednesday, Friday, and Saturday. Monday & Thursday was the regular worker.

In this instance, the substitutes were simply a part of life. The regular workers are ill. Can’t fault Beacon Community Services for this one, though Wednesday’s nightmare I can.

Monday & Thursday, with the regular worker here, the shaking was minimal. Oh, her leg gave her issues, about not wanting to move when commanded, but the actual body shaking was less. In fact, only happened once in those two days.

Tuesday wasn’t great, and Wednesday was super bad. The shaking was frequent, and extensive.  Now to be fair, Tuesdays wasn’t as bad as Wednesday, and I would wager that Wednesday’s was more due to the time being altered, without any notice.

Both of those days, the worker was actually fairly good. Wednesday’s the better of the two, and I’d say the better of all four who have shown up this week. ( Substitutes that is. )

Todays & Yesterday’s were okay but the shaking was much more than Tuesday. Partially I’d say it is due to the worry about the worker, and the aftermath of just okay care. I’d go so far as to say that it didn’t ease her stress, because there were way too many questions, way too many requests for instructions. And that is despite me giving them the instructions.

Makes me wonder, why they bother to ask me, if they are going to just go and ask Mom. It is like they don’t think I know what is the routine, or what is needed?

Anjoli was the best of the four, with Zhian right behind. Why?  They spent the time with Mom talking, not questioning her. They did the required job, effeciently & without fussing Mom. They took my instructions, and did it, without pestering Mom, which allowed her to not worry. I mean she is aware of her memory slipping, and is fighting it. Asking more questions, that have been answered, only makes her worry more, which in turn brings up the shaking.

When a worker is sick, or on holidays, you need to send a substitute. However, they need to be trained for that. It isn’t the same when you are a regular worker. As a regular you KNOW the routine ( or at least should ) but as a sub, well, how can you know?

There should be seperate training that takes that into account. Selected people should be assigned as just that, trained better for that. It would make life so much easier for all concerned. The Patient would be handled properly, and the life of the caregiver would be easier too.

IF you are going to provide home support care for people, the least you can do is have properly trained personnel. You need to have schedulers who can understand the need to provide Patients with regular workers, not a parade of new faces to help them.

At the same time, you need to know that regular workers will have time off, either due to vacations, personal issues, or illness. You need to have a squad of trained personnel, who specialize in dealing with Patients, they may never see again. These substitutes need to be able to pick up instructions from the primary giver, or have a proper plan available to read and study. 

Beacon Community Services fails on these key crieria. They do not have Current Updated Care Plans for their Patients. Nor do the majority of workers being sent as substitutes bother to even read or check them.  This does not benefit anyone, including the worker.

It needs changing. 

 This is about caring, not about profits.

It Is About Patient Comfort

  • Posted on October 13, 2010 at 10:03 am
This entry is part 4 of 12 in the series Making A Difference

We had a review yesterday, of the care plan for Mom.  Tanya (an RN for Beacon Community Services) came to do it, and frankly, I was pleased.  To begin with, she came across as a professional, and was pleasent to us both, and more importantly, she knew how to talk to an old person.

Unlike the last visit by Beacon & VIHA representatives (sept 2009). Tanya knew not to use certain words, not to make Mom feel concerned.

The interesting point is though, the RN’s need to get out more, need to do more than just shuffle the papers, such as the Care Plan.  They need to meet all of their patients, to get in the home and understand what is being faced, by both the Workers & the Patients.

Relying on technology is okay, but is a tool, not the solution.  Yes, having things like Care Plans online, for worker access is a big help, but only if that plan is up to date. Plus, workers need to read them, not toss them aside.  And there comes the rub.  See, they expect US to inform them of changes, which I suppose is okay, but let’s face it, we have other things to occupy ourselves with.

There is NO input from workers, which really is a shame. They are the front line people, and their opinion needs to be heard, and taken into account.  It can better streamline the operation, if the office knows that Patient A needs 10 minutes more, while Patient B needs 15 minutes less. 

Changes in what is needed, is more likely to be noted, if workers are assigned to a Patient on a regular basis. IT CAN prevent serious issues, but only IF THEIR INPUT IS ACCEPTED.

Sure, they only have so many hours per day to do their job (the RN’s) but there are things such as email, telephone, that can help them reach out to their clients.  Does Beacon even know if I have an email account? 

Technology is great, IF YOU USE IT PROPERLY.   Something that perhaps should be standard, is regular email contact with Patients who have it.  Regular telephone contact for those who don’t.  It isn’t Rocket Science, though for the operators of Beacon Community Services & VIHA, it certainly seems like it is.

Familiarity Breeds Contempt

  • Posted on October 12, 2010 at 10:05 am
This entry is part 5 of 7 in the series Vacation Hell

One of our regular workers is off, on holidays.  The good part is that they have assigned a regular to fill in.  And that is how it should be, or so I believe.  Though it does make me wonder, why it has taken so long for Beacon Community Services to come to the same conclussion.

I wonder if they buy into that old line, about familiarity and such, or is it simply that I have bitched so much, this is easier for them?

Bottom line is that it is better for the Patient. In this case a 93 year old woman.  With workers who are familiar with the situation, it makes the task easier for both worker & patient.   There is a comfort zone, but more importantly, a regular worker can spot changes, that are minute.

And that could save a life, or catch something long before it becomes life threatening.

Again, something I don’t think Beacon Community Services or VIHA take into account, or for that matter, care about.

Substitute #2

  • Posted on March 10, 2010 at 11:04 am

Going to be interesting to see, what substitute #2 will be like. Monday it was supposed to be Anita, that turned into a Trudy, and today it is supposed to be a Pamela.  Will it be her, or another sub for a sub?

I can understand, how at times people need a break. Hell, wish I could get one, but that really isn’t an issue for me. What is an issue, is the quality of staff being sent into the homes, which frankly scares the crap out of me.

IF the quality of staff that I have experienced where like the regulars we have, my stress levels would be conciderably less. I wouldn’t be wondering if I’ll have to call 911 to get a Paramedic in, because of some incompetent person. I wouldn’t be having nightmares that behind that closed bathroom door, a worker is assaulting or hurting my 92 year old mother.

YES it is a stretch, an over active imagination, however it is fueled by the numerous workers I have seen, who simply haven’t a clue as to how to do their job. It is fueled by workers who are not good in dealing with elderly patients, and more than that, is fueled by a Company that refuses to provide information as to the qualifications & training given to their workers.

Before I could Finish

In checking the schedule, after 9am, when the worker was due, it appears that well, THEY FORGOT ABOUT WEDNESDAY.   Kind of goes to show you, just how in tune this company, Beacon Community Services is, with their Patient Needs.

IN CALLING BEACON, it appears that in checking their schedule, they gave a big OOPS, then said that a Trudy was scheduled. Uh, sorry, if she had been scheduled, and it is now 9:30am why isn’t she here?

CAUSE NO ONE WAS SCHEDULED IS WHY!

Now I will give Lisa & Ben credit, for at least dealing with the issue quickly, however, the end result is this.

  1. Mother was sitting on her bed, waiting for the worker.
  2. The bed now needs changing
  3. My Schedule is shot
  4. I had to change her, and she’ll need a change again
  5. Added Laundry
  6. Breakfast is delayed, which means her regularly schedule medication is also delayed.
  7. A substitute for the substitute is being sent, another NEVER BEEN HERE BEFORE ONE.

I can accept mistakes, I really can, but it is more of HOW you deal with your mistakes, that makes a difference.  YES I should have noticed that there was no scheduled worker for today, Wednesday.  Course the schedule doesn’t come out until late Tuesday night, and this morning, I was still half asleep.  Not an excuse, merely an explanation.

This was not a last minute glitch. Beacon was fully aware that THE REGULAR SCHEDULED WORKER WOULD BE OFF TODAY TWO WEEKS AGO.   And that is what is perturbing, in that even knowing, they can’t figure it out.

IT IS THE PATIENT WHO SUFFERS FOR THEIR MISTAKES

Public Health Care with Private Contracts

  • Posted on August 19, 2009 at 2:33 pm

When You Forget

Personal Opinion by Ian Kovnats

Copyright © 2009 ◊ All Rights Reserved

I don’t know if it is how it is structured, or if it is simply incompetence, but when a home support forgets to do the basics, the ramifications for the caregiver are multiplied many times over. It isn’t Rocket Science, but simple common sense, which seems lacking today. And I do wonder, is it that people care less, or that they are under some unrealistic time constraints, that lets things slip through the cracks.

Like remembering to replace a soiled undergarment.

getting olderAs I get older, I know my memory is not at its peak performance level. Part of that is old age, though really fifty four isn’t that old, is it? I think though, that a great deal of my lapses, are due to increased stress. Constant worry over a loved one, over their health and their ability to cope with changes, does weigh heavy on a person’s mind. Least on mine, it does.

Mother is 92, and with a broken wrist, the stress levels are way up there. Stands to reason I suppose, that at times, it gets a bit hard to cope. I mean it isn’t easy to change a pair of soiled depends, that are soaked through with urine, or feces. Yet it is what one must do, and it does get a bit easier, over time.

The smell is the hardest part, but you manage to close your nostrils, or at least pretend it isn’t that bad. Truth is, it is that bad, and smell is a powerful sense. Not sure if you can ever truly get used to it, but what is the alternative?

I suppose you can hire someone else to do it, assuming you have that kind of cash laying around, but if you don’t? Then what? You certainly can’t leave the person for hours in their own urine, feces, though I suppose some animals will do that, but then, how can they say they care? I just can’t do it, nor has the notion ever crossed my mind, so I wonder, how can someone supposedly trained in home support, forget to deal with that basic element?

When one’s task is to wash and clean a person, how can you forget a simple chore, like replacing a soiled pad, panty, depend, or whatever? I mean would be rather standard, don’t you think? Yet today, that is exactly what happened. The assigned worker this morning, arrived late. That sort of set the tempo, I guess.

It is my fault too, because I know that this morning’s worker was not what I’d call the A Team, not even the C Team really. Nice enough lady, but not qualified, by any stretch of the imagination. She tries, which is nice, but this lady needs to attend an intensive course in how to care for an elderly patient.

note02And let’s stop this name calling. People under Home Care, are NOT CLIENTS. THESE PEOPLE ARE PATIENTS IN NEED OF CARE, NOT MISTREATMENT, NOT GOOD INTENTIONS, BUT HONEST PROPER CARE.

I am serious about this. We use euphemisms so as to avoid the guilt of screwing up, when we do. It is a lot easier to ignore that we are making mistakes, when it is just ‘a client’ versus ‘a patient’.

When I have to step in, to help get Mother out of bed, so as to avoid stressing her out, to avoid possible injury, I think it should be obvious, that the worker needs some refresher course, at best. You cannot allow ON THE JOB TRAINING when the PATIENT IS 92.

My mistake this morning, was to take the time to sit down, to fix breakfast for Mom, and just grab a few minutes to myself. I should have stayed close by, to insure that she did manage to properly clean Mom up, and yes, to make sure she dressed her properly.

To be honest, my real mistake is to have allowed Beacon Community Services send anyone. I should have bitten the bullet, and refused to allow them to send in their untrained personnel, for the care of my mother. That is a mistake I intend to rectify.

Now to be fair, several of those coming to the home are good. I really have had only two people, who I simply would not let in the door a second time, while the majority I find are very pleasant, and willing. However, the bottom line is that they are here to help my mother, to give me an hour break, not add to my workload.

Patricia Donaldson has done a remarkable job, in helping to solve the inconsistency of new workers. Least it looks that way, though it could simply be that they have run out of new workers to send. Yes, I am being sarcastic, but in all honesty, I do think Patricia has tried her best to accommodate me, and still keep to company policy.

That said, I also think a lot more needs to be done, in order to provide safe and quality workers for those patients in need. Training does seem to be minimal, at best, despite all the assurances from every avenue, and yet I wonder, do they even know what training any particular worker actually has?

Did they graduate at the top of the class, or the bottom? Did the company who passed them, ever fail anyone? Was it that they made the grade, after a second try, third, or fifth attempt at the course?

The point is this. As a result of forgetting a simple thing, like replacing soiled undergarments (depends in this case) Mother sat in her own urine. Her ability to tell if she is wet, is a bit, well, less proficient than you or I would be. So she sat in it, for God only knows how long.

Then in going back to her room, the trail of urine now dots the carpet, which means cleaning. Not a big deal, but you know, when one is already exhausted from doing this 24/7, it is a big deal. As well, more laundry, including now her shoes, is on tap for the day, when it wasn’t scheduled. It had all been done yesterday, so this was to be a day free of laundry.

Laundry means running up and down stairs. Not hard for someone healthy, like me, but when you are already run down, it is a chore, one would love to avoid. Not what you can do, such as today.

Now all that, the change from a wet nightshirt, a soiled nightgown, shoes, is not all that big of a deal. Nor is the added laundry, but in order to do all that, you have to remove the old, replace with clean. You also then have to wash, and wipe, and I am a guy, not a girl, so there is the embarrassment for her, which is unnecessary. It is also why Beacon Home Support is here.

Fact of the matter is, urine can burn. When you have skin that is already not in the best of condition, the added discomfort is not what you want to have happen. Hence, why I perhaps am making a big deal out of this, but I have to wonder, what about those poor souls, who don’t have a 24/7 caregiver like Mom has? What about those who don’t have a son or daughter willing to take that task on?

How are they faring?

I am not on a witch hunt, because like I have stated, the overall majority of those coming into our home, are nice and enjoyable people. The problem lies in that the training or experience level is not what it should be. AND that is what causes the problems.

With older people, it takes them a lot longer to get over something as minor as piddling in their pants, if they have them on. It takes them more time to recover from things like a burning skin or rash, due to the acid of laying in their own urine. It takes the little strength they have, to combat something that shouldn’t be.

 

 

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