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A Minor Reprieve

  • Posted on March 24, 2011 at 8:03 am

Thanks to some regularity in workers, in the routine, the shaking has subsided to just three episodes yesterday. The choking was a bit less, though not as much as I’d hope for. The questions of who is coming, when are they coming, has gone down to just a mere three last night.

Bottom line, is that this is day four, since BCS opted to change Mom’s schedule. Only NOW, has the impact become manageable.  This is what BCS needs to understand. When they screw around like this, it doesn’t go away within an hour or two. It lingers for days, which in turn adds wear & tear onto a body that is already under stress.

Caregiving is not easy, scheduling multiple workers isn’t easy, but it has to be done, with the Patient needs in mind, not the needs of the scheduler or corporate entity.

Despite Beacon Community Service Mom Will Turn 94 in May

  • Posted on March 21, 2011 at 8:43 pm
This entry is part 18 of 24 in the series Quality of Life

Least I am hopeful, that Mom will reach her ninety fourth birthday this May 12th.

There are times when I seriously wonder, if she will reach that milestone, given the constant assault on her fragile state, by Beacon Community Services ( BCS ). I truly do wonder what goes in the minds of many of those, who are employees of BCS. Now don’t get me wrong, there are some pretty awesome people working there, it just seems that they are a dwindling minority.

Today was a classic screw up.

Last week, they had changed the schedule of a substitue worker, sending her at 10am instead of the regular time of 9am. Not a big deal, you think?  WRONG!

See, a woman of 93 needs her routines. Especially when added stress brings on uncontrollable shaking and body tremors. BCS is aware of this situation, yet thinks nothing about it, when they play their games with Mom’s schedule.  Now the regular schedulers, do their best, but for some odd reason, other schedulers ( responsible for other regions ) meddle, and make changes.

Now after the last episode, you would think they would think twice before fucking around with Mom’s schedule. Guess Again!

This morning, at just around 8:15am the doorbell rang, and guess what, there was a worker we had never seen.  Forty Five Minutes Early, though the fact is, she was only 15 minutes early, according to her schedule.  Seems someone decided to pull Yvette for another Patient at 9am, and decided to NOT give us the option of having Yvette come at 10am. Instead they moved our time up a half hour, and FAILED TO NOTIFY US.

Even the worker they sent this morning, knew we were to be notified. She wasn’t exactly surprised that BCS failed to tell us, but it threw Mom into a state.

And that alone has created another day from Hell for Mom.   When a regular or familar worker shows up, on time, Mom may have one or two tremors during the day. Her spirit is more lively, less reticent, less worried. Today, before even noon, mom had several episodes of shaking. Quite severe too.  One almost got her falling, but at least I was there, to hold her up, to prevent a serious fall.

That is what BCS schedulers seem to not comprehend. This isn’t a game, it isn’t black and white. Added stress puts added stress on her heart, on her mind, on her body, and the result is simple, it cuts down on her ability to survive. It erodes her spirit, makes her despondent, and not fight to stay alive.

Sure there are complications, other reasons, but it is brought on by the unnecessary stress, created by heartless, unthinking, people employed by BCS ( Beacon Community Services ).  This comes down to a lack of training, but also to a general lack of caring. Now, don’t get me wrong. There are awesome people employed by BCS, some who actually give a damn about their Patients.

People like Yvette, Tracy, Wanda, Billie, and even today’s worker, Harriet.  Ben & Mary Anne come across as caring too, and have tried to insure that Mom gets qualified workers, and have called to inform me of changes to the schedule. It took a bit of time, but they have come through.  Unfortunately the system in place makes it nearly impossible to maintain a sense of continuity.

It really is simple, by keeping to a routine the tremors are less, the streess on her heart is less, which means her breathing is more regular, less labored. 

Today it wasn’t that way, thanks directly to the way Beacon Community Services played thier game of whack a mole. They disrupted the schedule that as of 9pm, still hasn’t been fully reclaimed. She is still shaking, has suffered at least seven shaking episodes. Her breathing has been ragged and uneven for most of the day.  She has suffered several choking spells, again directly related to the stress.

And if there has been one question, there has been twenty or thirty, of who is coming tomorrow, and what time.  It will gnaw at her all night, giving her a restless night’s sleep, but it will also gnaw at me. It means my sleep will also suffer, and I can’t afford it.

You see, it comes down to me, to keep her calm. Hard to do, when you yourself are on edge, are stressed out. One has to try and hide that from her, but that isn’t easy.

What BCS doesn’t seem to get, is that people don’t react well to sudden change, to increased stress levels. Especially when those people are 93 years of age. Hell, at 55 it doesn’t come easy to cope with either. My day gets screwed, because now every step Mom takes, I have to be close at hand. I can’t let her go to the bathroom on her own, because she is prone to tremors. Today, she had several, and only by me being there, did a serious fall get prevented.

That means my day is shot, is filled with unnecessary stress. I can’t concentrate on my own work, as I have to keep an eye on her. I have to watch her, for signs of distress, and let me say, there was several times when  I had to step in.  Most days, I can get time to work, maybe not for hours at end, but at least an hour here and there.  Not today.

Only Getting Harder

  • Posted on April 19, 2010 at 9:26 pm

Today has not been a stellar one, for either of us.

I know better, yet I still lost it, and that was dangerous. Arguing with Mom is never good, never was even when I was a kid, but it has added danger when she is nearing 93, and not in great health. It sets a tone, that is hard to eliminate.

One can perhaps make the excuse that it is just nerves, that the daily grind is taking its toll, but you know, so what? That shouldn’t be an excuse, because the ramifications are severe. Her voice became thick, slurred, the lower lip quivering and drooping.  NOT GOOD!

And yet, it leaves a sort of exhaustion, that just won’t seem to go away. It impacts the entire mental outlook, for us both. Factor in the daily hassles of life, of dealing with uncaring support like Beacon or VIHA and it can be overwhelming.  The bottom line is, I have to be smarter, have to contain my own anxieties, my own needs, to insure arguments don’t happen, no matter the provocation, or perceived provocations.

I need to weigh each word spoken in answer, and to weigh how to convey delays in getting her what she is fixating on.  Like the shaving, that has now progressed to shaving, rather than creams.

I also need to get it into my thick head, that things won’t get easier, that right now is the best I can expect, and that the future, holds more stress than this. I have to accept that death is coming for her, and that my words can either hasten it, or delay it. AND DELAY IT, IS WHAT I WANT.

This is caregiving 101, and yet easy to say, easy to even write, but damn, it is hard to put into action, day in, day out, minute by minute.  Yet that is what you have to do, and let’s be honest.  Support is fleeting, even from those who love you.  It is UP to you, and YOU ALONE.

The reality of this all, is that it is a war of attrition, and one hopes that they will be the victor. At times, I have to admit, that I feel like I am losing that war, or that even if I do succeed in holding it together, to the end, the aftermath of it will leave me useless.

These are the thoughts, the feelings that tear at me daily, nightly, 24/7 and the truth is, it won’t get better. How to fight it? I wish I knew, I wish there was an answer, but I suppose all there is, is to struggle forward, to get up each morning, and hope for a bit of peace.

Public Health Care with Private Contracts

  • Posted on August 19, 2009 at 2:33 pm

When You Forget

Personal Opinion by Ian Kovnats

Copyright © 2009 ◊ All Rights Reserved

I don’t know if it is how it is structured, or if it is simply incompetence, but when a home support forgets to do the basics, the ramifications for the caregiver are multiplied many times over. It isn’t Rocket Science, but simple common sense, which seems lacking today. And I do wonder, is it that people care less, or that they are under some unrealistic time constraints, that lets things slip through the cracks.

Like remembering to replace a soiled undergarment.

getting olderAs I get older, I know my memory is not at its peak performance level. Part of that is old age, though really fifty four isn’t that old, is it? I think though, that a great deal of my lapses, are due to increased stress. Constant worry over a loved one, over their health and their ability to cope with changes, does weigh heavy on a person’s mind. Least on mine, it does.

Mother is 92, and with a broken wrist, the stress levels are way up there. Stands to reason I suppose, that at times, it gets a bit hard to cope. I mean it isn’t easy to change a pair of soiled depends, that are soaked through with urine, or feces. Yet it is what one must do, and it does get a bit easier, over time.

The smell is the hardest part, but you manage to close your nostrils, or at least pretend it isn’t that bad. Truth is, it is that bad, and smell is a powerful sense. Not sure if you can ever truly get used to it, but what is the alternative?

I suppose you can hire someone else to do it, assuming you have that kind of cash laying around, but if you don’t? Then what? You certainly can’t leave the person for hours in their own urine, feces, though I suppose some animals will do that, but then, how can they say they care? I just can’t do it, nor has the notion ever crossed my mind, so I wonder, how can someone supposedly trained in home support, forget to deal with that basic element?

When one’s task is to wash and clean a person, how can you forget a simple chore, like replacing a soiled pad, panty, depend, or whatever? I mean would be rather standard, don’t you think? Yet today, that is exactly what happened. The assigned worker this morning, arrived late. That sort of set the tempo, I guess.

It is my fault too, because I know that this morning’s worker was not what I’d call the A Team, not even the C Team really. Nice enough lady, but not qualified, by any stretch of the imagination. She tries, which is nice, but this lady needs to attend an intensive course in how to care for an elderly patient.

note02And let’s stop this name calling. People under Home Care, are NOT CLIENTS. THESE PEOPLE ARE PATIENTS IN NEED OF CARE, NOT MISTREATMENT, NOT GOOD INTENTIONS, BUT HONEST PROPER CARE.

I am serious about this. We use euphemisms so as to avoid the guilt of screwing up, when we do. It is a lot easier to ignore that we are making mistakes, when it is just ‘a client’ versus ‘a patient’.

When I have to step in, to help get Mother out of bed, so as to avoid stressing her out, to avoid possible injury, I think it should be obvious, that the worker needs some refresher course, at best. You cannot allow ON THE JOB TRAINING when the PATIENT IS 92.

My mistake this morning, was to take the time to sit down, to fix breakfast for Mom, and just grab a few minutes to myself. I should have stayed close by, to insure that she did manage to properly clean Mom up, and yes, to make sure she dressed her properly.

To be honest, my real mistake is to have allowed Beacon Community Services send anyone. I should have bitten the bullet, and refused to allow them to send in their untrained personnel, for the care of my mother. That is a mistake I intend to rectify.

Now to be fair, several of those coming to the home are good. I really have had only two people, who I simply would not let in the door a second time, while the majority I find are very pleasant, and willing. However, the bottom line is that they are here to help my mother, to give me an hour break, not add to my workload.

Patricia Donaldson has done a remarkable job, in helping to solve the inconsistency of new workers. Least it looks that way, though it could simply be that they have run out of new workers to send. Yes, I am being sarcastic, but in all honesty, I do think Patricia has tried her best to accommodate me, and still keep to company policy.

That said, I also think a lot more needs to be done, in order to provide safe and quality workers for those patients in need. Training does seem to be minimal, at best, despite all the assurances from every avenue, and yet I wonder, do they even know what training any particular worker actually has?

Did they graduate at the top of the class, or the bottom? Did the company who passed them, ever fail anyone? Was it that they made the grade, after a second try, third, or fifth attempt at the course?

The point is this. As a result of forgetting a simple thing, like replacing soiled undergarments (depends in this case) Mother sat in her own urine. Her ability to tell if she is wet, is a bit, well, less proficient than you or I would be. So she sat in it, for God only knows how long.

Then in going back to her room, the trail of urine now dots the carpet, which means cleaning. Not a big deal, but you know, when one is already exhausted from doing this 24/7, it is a big deal. As well, more laundry, including now her shoes, is on tap for the day, when it wasn’t scheduled. It had all been done yesterday, so this was to be a day free of laundry.

Laundry means running up and down stairs. Not hard for someone healthy, like me, but when you are already run down, it is a chore, one would love to avoid. Not what you can do, such as today.

Now all that, the change from a wet nightshirt, a soiled nightgown, shoes, is not all that big of a deal. Nor is the added laundry, but in order to do all that, you have to remove the old, replace with clean. You also then have to wash, and wipe, and I am a guy, not a girl, so there is the embarrassment for her, which is unnecessary. It is also why Beacon Home Support is here.

Fact of the matter is, urine can burn. When you have skin that is already not in the best of condition, the added discomfort is not what you want to have happen. Hence, why I perhaps am making a big deal out of this, but I have to wonder, what about those poor souls, who don’t have a 24/7 caregiver like Mom has? What about those who don’t have a son or daughter willing to take that task on?

How are they faring?

I am not on a witch hunt, because like I have stated, the overall majority of those coming into our home, are nice and enjoyable people. The problem lies in that the training or experience level is not what it should be. AND that is what causes the problems.

With older people, it takes them a lot longer to get over something as minor as piddling in their pants, if they have them on. It takes them more time to recover from things like a burning skin or rash, due to the acid of laying in their own urine. It takes the little strength they have, to combat something that shouldn’t be.

 

 

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